Archive for June 25, 2012

everything on track

Well for now all my fears remain unfounded!  Praise God!

The blob was measuring right around six weeks (the doc was a bit vague) at 0.84cm crown to rump.  The heartbeat was somewhere between 140-160bpm.  Apparently I have a tilted uterus so it took a bit of digging around to get a clear shot.

I have another ultrasound with the regular OB next week and then another with my high risk ob (which I GREATLY prefer since the doc himself does the u/s) at 9 weeks.  I was a little worried about this since I was afraid they would make me go without one from 7 weeks til the NT scan at 11-12 weeks.  Go lupus?  I guess?

Of course, the doc ended our visit by noting the fact that there is still a non-insignificant chance of miscarriage until we get through week eight – but said that everything appears to be developing on target right now which is a good sign.  Still, I’m having a hard time not fixating on the fact that he said the word miscarriage.

Do “normal” pregnancies get reminded of the chances of miscarriage this often?  Because when I emailed my rheumy right after I got my BFP he replied back that I shouldn’t get my hopes up too high yet until we get through week eight.

Anyway, trying to push that out of my mind and focus on the positives for now!  I still can’t believe that something so tiny has a heartbeat…and is growing inside of me!  Incredible.

someone please tell me the insane fear gets better at some point

My first ultrasound is today and I did not sleep well at all last night.  There was much tossing and turning, anxiety and nausea.

If only abject fear and paranoia were pregnancy symptoms, I could be quite sure that the little one is still growing away in there.

I admit, most of my fears are not based on anything other than fear.  I’ve had normal/fast-ish rising betas, no spotting or bleeding, no unusual cramping, but still I’m afraid.

I’m afraid the baby won’t be in my uterus.  Or that there will be something in my uterus but that there won’t be a heartbeat.  Most irrationally, I’m afraid that somehow this is all in my head and that I was never pregnant at all (do women with hysterical pregnancies produce hCG?  on second that, I don’t really want to know).

These were the thoughts that kept me awake last night despite my best efforts to accept that this is out of my hands for now.

Both my mom and Paul will be coming with me today for moral support.  It will either be a happy memory that we will share together or I’ll have the two most comforting people in my life there with me on the worst day of my life.

T-minus six hours and nine minutes and counting.

But who’s counting?

Oh yeah, that would be me.

it’s not all about my uterus

** As I’m sure even those of you who don’t give a crap about basketball are aware, the Miami Heat are the new champs of the NBA.  I spent most of the series thinking I was cheering for the Thunder and yet during the actual games cheering for plays made by the Heat.  It was all very confusing until Game 5 when Mike Miller rained down a barrage of three’s even though he could clearly barely walk up and down the court thanks to his old-man back.  That’s when I realized that although I preferred the Thunder stars (KD, Westbrook and Ibaka in particular, Harden needs to shave his beard and then maybe) I can’t stand a lot of their role players.  (Two words: Derek Fisher.  ’Nuff said.)  The opposite is true of Miami, I love their role players (c’mon, Haslem, Turiaf, Battier, Chalmers, Cole, and Miller with his Gatorade commercial worthy Game 5, what’s not to love about all those guys?) and at the end of the day, I’m a gal that loves role players.  To me, they make up the heart of the team and they are always overlooked despite the fact that a role player is almost always the difference maker in winning a championship.  Stars will do their thang, it’s the role players and their gutsy, no glory performances that make the difference.  What can I say?  I’m a dirty work gal, and I prefer the dirty work players of Miami to those on the Thunder.  So even though I thought I wanted the Thunder to win, I find myself overjoyed for all the players who contributed to the Miami win.  Well done boys.  And just like when the Giants won the World Series a couple years ago, I really, really love that moment when the win sinks in and grown men turn into little boys.  It always makes me smile (unless it’s the Lakers, of course).

** Have you guys heard about those little monsters that bullied a 68-year old grandma on the school bus?  I admit, I couldn’t watch more than a few seconds of the video without wanting to burst out into tears.  Reading the descriptions of the things that were said were bad enough.  One of my friends said the dreaded phrase, “kids being kids” and I completely lost it at him.  If that is “kids being kids” then kids must be vile little creatures.  I get kids bullying other kids, but what has happened to our society that kids have the nerve to bully a senior citizen?  My first thought was, wow, I hope their parents are completely ashamed of themselves.  Of course, the sad fact is, they’re probably not.  How else could they have raised such disgusting, disrespectful, foul-mouthed little creatures?  I read in an ABC article that one of the father’s said he thinks his son has been punished enough.  Well, it’s exactly that kind of attitude that has let your son turn into an adult-size asshole right before your eyes.  If that was my kid?  First of all, I’d be asking what I did wrong, and second, I would be marching my child over to Mrs. Klein’s house and tell him he better get down on his hands and knees and beg for forgiveness.  I would also be doing everything I could to apologize (in person, none of this writing a letter and sending it through the news media bullshit) to that poor lady and her family.  And you better believe, every single video game cartridge memory card my kid owned would be deleted immediately, not to mention grounding for the entire summer (or maybe until they graduate from high school).  But again, I doubt any of that will happen to these kids because their parents are probably too busy telling them it’s not their fault.  Thank goodness the little twerps were dumb enough to film the whole thing themselves and put it up on the internet of their own accord, thinking it would be just hilarious.  At least now Mrs. Klein will have enough money to retire and never have to be within five feet of those awful “children” again. Here is the best article I’ve read so far on the whole thing.

** My friend Lian pointed out this Atlantic Magazine article to me entitled Why Women Still Can’t Have It All.  I found it fascinating, particularly in that the reasons Slaughter gave for why it is difficult for women with families to succeed in the world of international relations are directly applicable to the field I work in.  Long hours in the office?  Check.  Frequent travel?  Check.  Inflexible schedules?  Check.  And let’s face it, Wall Street is still very much an “ol’ boys club.”  I consider myself lucky that I work in a San Francisco branch office because the work-life balance here is leaps and bounds better than it would be if I were in NYC, but even in SF there is the pressure to put in facetime and never take time off unless you absolutely have to.  For example, I get four weeks of vacation each year but haven’t even come close to taking that amount of time off.  Last year I rolled over the maximum allowed ten days and right now I’m sitting on 26 days of vacation time.  I’ve recently started thinking long and hard about what direction my career will take if this pregnancy is successful and I have yet to come up with any answers.  There are only a handful of women in the office who have a role similar to mine and only ONE that has a child.  The one that does have a child is much older than I am, had her child only very recently (I have never asked but my guess is she plans to have only one, given her age) and was already extremely senior in the firm before she got pregnant.  Most of the men I work with have children, but they also almost all have stay at home (or work from home) wives.  I don’t really have anyone to look to for how to be the kind of working mother I’d like to be if I stay within my current position, and I do find that somewhat upsetting.  I think there are a lot of ways that I could easily do my job at least part of the time from home, but I don’t know if the culture of my job (not just at my firm, but across the entire street) would be open to that.  Hopefully (there’s that word again!) this will be something I actually get to try to figure out in 8 months or so.

5w3d

It still hasn’t really sunk in that in 35 weeks there might just be a little one in our home!  It’s still all pretty surreal at this point, especially since I’m not having a ton of obvious pregnancy symptoms.  However, I figured it might be a good time to start tracking the changes in my body, maybe it will help calm me down in a future pregnancy (assuming all goes well with this one).

Weight gain: As of this morning, none.  I weighed 108.6lbs when I got on the scale this morning.  However, I am now 110.8lbs, pretty sure this is just due to bloating.  I think my morning weights are probably going to be more accurate so I’ll probably go off of that going forward.  Normally my weight fluctuates pretty wildly so until I see some significant weight gain (i.e. 5+ lbs) I wouldn’t be surprised if it swings up and down.

Symptoms: I’m definitely getting some pregnancy bo.obs already.  Not to the point where I need a new bra or anything, but I can feel the difference.  Also sore bo.obs and ni.pples but the intensity of this seems to change every day which kind of freaks me out.  I’m pretty exhausted at times but this could also just be lack of sleep.  And I’m having really vivid, crazy dreams, mostly ones that would probably be considered nightmares or at least not pleasant.  I’m very bloated all the time (at times it looks like I already have a baby bump – like right now!) and gassy some of the time.  I have had a bit of nausea and the feeling like I’m going to gag in the mornings, but that was something that tended to happen long before I got pregnant so it’s really hard for me to attribute that to morning sickness.  I think it’s mainly because I don’t eat enough for dinner and get overly hungry by the time I wake up.  Not much cramping-wise, I do have little twinges, almost like a pinching feeling, it happens on both sides and sometimes in the middle.  I also had a bit of a bloody nose last week and also, er, a little flare up with hemorrhoids which caused a bit of a panic one morning last week (until Paul asked me to check where the blood was coming from before I started weeping).  (Yes I have an issue with hemmorhoids ever since my medication didn’t agree with me during my last flare, super sexy I know, but that is why we have a washlet now).  As I’ve mentioned before, perhaps the oddest symptom I have is how not achey my joints feel despite the fact that I haven’t been sleeping much – normally if I don’t get at least 7hrs per night I pay for it with swollen or painful joints the next day, but I’ve only been getting maybe 5-6hrs a lot of nights these past couple weeks and almost no joint pain to speak of.  Maybe I should have done this whole pregnancy thing sooner, eh?

Cravings: This baby definitely takes after it’s daddy.  Normally I enjoy my sweets but in the past week or so sweets have not sounded very appealing to me at all.  I want salty, spicy and sour.  Yum.

Questions: I’m having the first of three visits I’ve scheduled with three different OB offices this Friday and I’m afraid of having the pap smear done.  I know that for the most part the medical field does not think there’s a connection between pap smears and miscarriage but the idea of bleeding and cramping afterwards, even if it’s considered “normal” is just too much to bear.  I don’t think I can mentally make it through something like that and so I’m seriously considering turning it down.  The problem is I haven’t had one since August 2010 so it has been almost two years and I should be getting one.  But, from what I’ve read, even if it comes up abnormal nothing will be done to treat it while I’m pregnant anyway, so I think I would rather just have it done after the baby is born.  Thoughts?

for Paul

I wanted to do something special for Paul’s first Father’s Day.

But since at this point all we have are three betas indicating there should be a baby growing in there, I’m just not mentally in a place yet where I feel confident enough to buy anything that will leave us with a tangible reminder of what could have been, should this not work out. I know that this probably isn’t the right attitude to have and that I need to be strong and hopeful for the little one growing inside of me – and most of the time I am, but the idea of having any baby stuff in the house right now just feels like I’m taking the future for granted. Maybe once we see the heartbeat this will change, but our first ultrasound is still over a week away.

So instead, I’m writing. Writing about this amazing man that is my husband, and who has now become the father of my child (and with any luck, children). Hopefully next year we will be celebrating this day with a wriggly, chubby-cheeked four-month old in our arms.

While I have tons of doubts about what kind of mother I’ll be, there is no question in my mind that Paul will be an incredible father. I know this because of the way he has loved and taken care of me through some of the most difficult times in my life. I know this because being with him has made me want to be a better person, a person that deserves to be with someone so strong and so good inside.

A long time ago, not long after we first started dating, he told me that he knew he loved me because he woke up every morning and the first thing he felt was lucky. I can honestly say that eight years later (exactly eight years tomorrow actually), I wake up every single morning and am simply amazed that this man chose to love me. Every morning before I get out of bed, I kiss him on the forehead and think about the fact that I am the luckiest woman alive to have him by my side.

I didn’t know this kind of love could exist before I met Paul.

Throughout the struggle towards pregnancy, the thing that hurt the most was the thought that I might never be able to carry the child that would be a little tiny reflection of this man who deserved more than anyone else I know to have his wonderfulness passed on. It wasn’t the loss of my own genetics that hurt, it was the potential loss of his.

It hurt me to know that after all he had given to me, everything he had done to take care of me and nurture me, my body could deny him something I knew he wanted very badly, a biological child.

(This isn’t to say that he isn’t also equally excited at the idea of children who come to us through adoption some day, because he has made it absolutely clear that he is, but as I’ve written before, I think it’s totally normal to want both.)

I could give you a laundry list of all the ways I know Paul will be a great dad, from how he never complains about waking up at 4:30am to drop me off at work to how he willingly wipes and washes my obese cat’s poopy behind, but I think (hope) there will be plenty of time in the future to write about what a wonderful father he is to our baby. For today, I’ll just say that I’m so thankful for the opportunity to make him a dad.

through the looking glass (with any luck, anyway)

When I first stumbled into the IF world, there was a lot about it that I didn’t really get.

And, really, how could I?

I was a couple years out of college, not ready for children, but since I had been diagnosed with lupus I was vaguely aware of the fact that my road to babies would probably not be an easy one.

I was drawn to the IF world but again, I didn’t exactly get everything about it.

One of the things that confused me the most was how bitter and angry a lot of these bloggers seemed to feel towards “preggos” and “fertiles.”  I remember reading angry rants about pregnancy announcements or the “expectant mother’s” parking spaces or the general cluelessness of the fertile world and not getting it.

It seemed like such misdirected anger to me, after all, someone else having a baby didn’t affect these women and their own chances at reproducing.

I admit it, I judged them for it a little bit.  And I remember thinking things like, that will never be me.  I’ll never be like that.

And I wasn’t.  At least, not at first.  When babies first started seriously crossing my mind four years ago, I was still overjoyed at every pregnancy announcement, happy to coo over newborn babies, didn’t bat an eye at that lady sporting a big ol’ bump.

I had a lot of hope for myself.  I believed that I would get off the Cellcept and in a couple years Paul and I would be starting our family.  It never even crossed my mind that things might not go according to plan.

And then of course, just as I was getting so close to the finish line, I had the worst flare of my life to date and boom, suddenly the future had turned into a murky mess of confusion.  My carefully constructed plan felt like it had been blown to pieces.

I’ll never forget sitting in my nephro’s office, the one who had been so hopeful about my chances for pregnancy a few months earlier, and hearing him say the words, “You hate to tell a woman so young that she probably shouldn’t ever get pregnant, but…”

He never finished the sentence.  He didn’t have to.  I remember the tears that filled my eyes and how I tried to hold them back.

That flare was what broke me.  It catapulted me into a place where suddenly I understood.  I understood the bitterness.  The anger.  The revulsion at seeing someone else’s impending happiness.  It wasn’t about those preggos, those fertiles, those baby bumps.  It was about the reminder.  The reminder of what might never be.  The reminder of what would never come so easily.  The anger at how the rest of the world seemed to take it all for granted.

A moment I’m still ashamed of now, two years later, was when I saw this girl I went to college with at this weekly food-truck event.  I was still recovering from my flare.  I was bloated from the steroids and all the water-retention from my broken kidneys.  I looked pregnant.  And she actually was pregnant.  Like about to give birth any minute pregnant.

I wasn’t even sure it was her at first, she was extremely pregnant and wasn’t one of those women who only gained it in the belly if you know what I mean.  She saw me too, but she probably wasn’t sure it was me either as I was carrying about forty pounds more than the last time she saw me in college.  But as we snuck glances at each other I became more and more sure it was her and the fact that she kept looking at me made me think she was thinking the same thing. (I would later find out through mutual friends that she had indeed moved to the bay area and had a baby, so yes, it was definitely her).

So I hid.  I literally ran away.  I could not bear the thought of saying hello to her.  I couldn’t look at her pregnant belly.  All I could think about was the fact that she had what I wanted, what I might never have.

We weren’t the closest of friends as evidenced by the fact that we drifted completely apart after college, but we were friendly and in the same circle.  And I should have said hello.  And I should have congratulated her.  But all I could do was feel sorry for myself.  Feel angry that I looked six-months pregnant but all I was carrying was water in my belly and she clearly had a baby in hers.  It wasn’t her fault, but I didn’t know who else to blame.

I don’t really know what the point of this post is.  I guess, it’s something that’s been on my mind since I found out I was pregnant.  I know there are people in my life who are still struggling with the pain of infertility and loss.  There is at least one person in my family who I love very much who I’m afraid will be hurt if this pregnancy sticks.  Not that she won’t be happy for me, but just that it will be yet another reminder of the unfair hand she has been dealt so far.

And I hate that, I really do.  I hate that there’s nothing I can do about it.

All I can do is try my best to be sensitive about this.  So if things continue to go well, there will be no real-time FB updating of this pregnancy.  No announcement, no ultrasound photos.  Nothing that might inadvertently hurt people I care about who are already feeling enough pain.

As happy and overjoyed I am about being pregnant, I can’t forget how awful it is on the other side of this.  And if I get my happiness, the least I can do is try my best to make it a little less hard for someone else.

(I feel the need to add the caveat that this blog is like my journal and so I do plan on chronicling everything here.  I don’t think many people in the IF community read this anyway, in fact, I think I probably come here more than any other visitor does, so I feel okay about continuing to post.)

specialists vs normal people doctors

First, the good news, my beta at 4w5d was 5,043!  The nurse seemed quite happy with it so I’m going to take that and run with it for now.  She even said that they’d be able to prove to me soon that there really is a baby growing in there hehe.

And now the annoying stuff.  I’ve been on a quest to find a regular OB and I’m so frustrated by dealing with office staff that is only used to dealing with “normal” people.  They don’t seem to understand what “high risk” means and since this is my first pregnancy, I really don’t know what it means either, but I do know it means that I should not be getting my first u/s at 12 weeks.

I was specifically told by my high risk ob that I should be getting u/s quite frequently, if not at every visit.  I was also told there would be more labs done and more frequent visits than in a “normal” pregnancy.

Well the staff at all these “normal” people offices don’t seem to get that at all.  They keep telling me that as long as there are no obvious complications (i.e. bleeding, cramping, etc.) that they believe I’ll be treated the same and on the same schedule as any other patient.

Um, no.

That is not going to fly.

Then they ask me things like why I’m high risk and clearly have zero clue what lupus nephritis is and why it would make me a high risk patient.

I just don’t want to deal with these doctors for “normal” people.  I like the safety of my specialists who actually know what lupus is and what the risks are.  I don’t know if I can trust a “normal” OB who I will probably have to educate on my condition.  I mean, seriously?  What is the point of seeing a doctor who you have to teach about your medical condition?

I love my high risk ob so much and am so upset that he can’t be my sole provider through this.  I have a feeling that every visit with the “normal” OB is going to be needlessly stressful and frustrating.

I hope I’m wrong, but I just can’t see this going any differently.

finally

Updated my About page. It only took me 2+ years!

the crazy

So…I’ve pretty much gone into full on anxious-crazy-pregnant-lady mode.

As in, constantly obsessing over whether or not I actually am still pregnant.

Today’s reason du jour, my b.oobs are not quite as sore as they have been.  It is my only real, for sure, pregnancy symptom and I have been poking at the girls all day and they aren’t quite as angry as yesterday.

Cue minor emotional meltdown.  I called my nephro’s office this morning because the high risk ob is out of town and I figured that meant I can’t get another beta from him, I waited all day until I couldn’t wait any longer and called back to see if the receptionist had gotten him my desperate pleading message to order another beta.  She was really sweet and finally got ahold of him and he asked why I didn’t just call the ob’s office because his staff should be able to call in the order even if he was away.  So I did and the nurse was like, “Sure of course.”

So I could have saved myself the angst of waiting all day to find out whether or not they’d let me get another test.

Oh well.

Right when I got home from work I headed straight for the car and the hospital.  Even before I had my blood drawn, my mind was already racing with thoughts like, “What if it JUST started falling?  How will I know unless I get another test after this one?”

Hi, my name is Joyce and I’m addicted to pregnancy tests.  Pee sticks, blood tests, ultrasound, whatever, just someone reassure me I’m still pregnant pls ok thx.

I’m very torn as to whether or not I want to have morning sickness.  On the one hand, it kind of makes sense that I don’t since my mom said she never had it with either me or my sister.  I’m assuming things like that are somewhat hereditary so if she never had it, it’s reasonable to assume that I might not either.  Since I have a horrible appetite to begin with and feel nausea all the time under normal circumstances, the fact that I’ve actually felt better since getting pregnant could mean that NOT having morning sickness actually is my symptom?  And if I did get morning sickness I would probably not be able to eat anything at all since I already have no appetite to begin with (normally).

But this whole lack of symptoms thing is really pretty disconcerting too.  It’s too early for me to feel the baby move, we haven’t even had an ultrasound yet, and all the other “symptoms” are things that are kind of normal for me anyway.  Like being tired (I also haven’t been sleeping so hard to attribute that to being pregnant), breaking out (something I never did as a teenager but have been having issues with over the past year or so), stuffy nose, bloated and peeing a lot.

Okay.  I really need to stop now.  This can’t be healthy.  I need to let go of this because if anything bad is happening right now inside of me, I can’t really do much to stop it, can I?

I just have to believe in my body.  Obviously given my past this is VERY hard to do, but Paul pointed something out to me yesterday.  Despite all the shit my body has put me through over the past eight years, it has done something right recently.  It got pregnant very quickly.  And so I need to give it a break and just hope that it keeps doing right.

embracing joy

This morning Paul and I went to church for the first time in several weeks.  I’ve been finding excuses to miss for the past few weeks so I made a point of us going to the earliest service this morning so that I would have less time to talk myself out of it.

As always, I was so glad that we went because it was a message I know God meant for me to hear, now, when I need it the most.

It was the second week of a new series called confidere: Advancing with Faith and today’s message in particular was about embracing the joy of life and how this was illustrated in Jesus’ first miracle (turning water into wine at a wedding feast).

Ever since I saw that faint second line last Monday, I have been wondering, how much joy should I allow myself to feel?  How happy can I be about this?  I have been doing a lot of hedging, never wanting to talk about “when” we have a baby, but still “if.”  My friend EndoJourney actually wrote an amazing post about this recently which really hit home with me even though her road so far has been a million times harder than mine (luckily she is also one of the strongest people I know).

When you have had things go wrong, when the road to joy has been difficult and when you are well aware of exactly how quickly it can all be taken away from you sometimes it seems impossible to celebrate the moment.

But after this morning, I’m convinced that that is exactly what God wants me to do.

Here are the notes I took:

  1. It [the miracle] happened at a wedding feast (a celebration). The way of Jesus was a happy way.  Jesus was comfortable with celebration. Jesus models for us an essential joy and a way to celebrate.  People feel comfortable around him and he had a love of life that was contagious.
  2. It was the result of a request that could be viewed as frivolous. It reminds us that we cannot put Jesus into a box.  Jesus embraced all aspects of life even as he came to give his life.  As long as we live our life with humility and for God, we should seek to enjoy the gifts of life.  Jesus did not see the unfairness of life as a justification for pulling away from celebrating the gifts of life.
  3. It was an answer to a request from someone He loved that was made for the benefit of another.  We’re given permission to ask for blessing even when it is not an earth-shattering request.
What does it mean to live a spiritually integral happy and joyful life?  There will be times the Lord asks us to pull back, but there are also times He will ask us to do things more joyfully.

 

To me the message was clear, no matter what happens tomorrow, God is asking me to celebrate today and each day I am blessed with this little life that grows inside me.

And if that wasn’t clear enough, as we sang the final song “Our God” by Chris Tomlin, I received a phone call followed by a voicemail which I checked as we walked down the street to our car.  It was my high-risk OB calling with the results of my second beta on Friday.

552 (doubling time of ~26 hrs, “normal” is 48hrs)

I admit, despite the sermon I had just taken in, my first reaction was mixed (so what’s new?), because I know I’ve read that betas that rises too fast can be bad in rare cases.  Luckily I called the doctor’s office and the answering service paged him and he called me right back to let me know in his mind this was an absolutely great number and he didn’t think there was anything to worry about it.

So today, I am celebrating the fact that I am four weeks and two days pregnant and that so far things appear to be going about as smoothly as I could have ever hoped.

Our God is greater
Our God is stronger
God You are higher than any other
Our God is healer
Awesome in power
Our God, our God