Archive for Navel gazing

cause all the dreams you never thought you’d lose, get tossed along the way

When I started writing on the internet twelve years ago (twelve years ago this month actually), I didn’t know.

I didn’t know what the future would be like. I didn’t know the things I would experience.  I honestly couldn’t imagine what anything beyond the next few weeks of my life would look like.

And so, for years, I shared my place on the internet with far too many people.  I shared without discretion.  Hell, I had the damn link posted on my AIM profile for God knows how long.

Now I wonder what this blog would have looked like if I hadn’t done that.  And you know what? I’ll never know.

I don’t know how many people from my “real” life have kept the link somewhere.  How many people have forgotten about it but still have it saved in a favorites list they scan through at random.  How many people still check in from time to time when they are bored and see me in their list of FB friends.  I don’t have a clue.

And the truth is, I hate that.  I’ve thought so many times about shutting this place down.  Every year I struggle with the idea of not renewing this domain.  Running away from my little home here on the internet, the one I’ve lived at for over a decade.

But I don’t have the balls to do it.  I don’t know if I ever will.  You see, after writing here for so long this has become as much a part of my identity as anything else in my life that means anything.

Maybe that’s weird, but, well, so am I.  Clearly.

So the way I see it, I have two choices.  I can start being honest here again and have this continue to mean something.  Or I can post pictures of my cat and talk about the weather and have this place fade to the point where it means nothing to me anymore and the only option left will be to start over.

For now, I’m going to give option one a try.

You know this quote?

Work like you don’t need money. Love like you’ve never been hurt. And dance like no one’s watching.

Here is my best attempt at blogging like no one’s reading.

I’m starting here and now.  And with any luck this won’t end up like so many “real” posts I’ve started over the past who knows how long – in the drafts folder, or more likely, in the trash folder.

So the truth is, I’m a fucking mess.  A hot, disgusting, messed up mess.

I feel more broken than I have in a long time.

I spent the last five days in my room, mostly in bed.  I have withdrawn from everything.  From my friends, from thinking about the future, from the ability to hope for anything good to happen.

I broke down completely on Sunday and spent most of the day crying.  Over what exactly?  I don’t know.

I think about things and then I hate myself for them.  I’m going to be in two of my best friends’ weddings this year and all I can really think is how it’s going to feel when they get pregnant before I do.  And then I hate myself even more for thinking that.

Because I wish I knew how to just be happy for them, but I can’t think about them moving forward in their lives without feeling like I’m going backwards.

I hate this vicious cycle of sadness, bitterness, guilt, self-hatred, more sadness, etc.

I hate that I can’t even really bring myself to open Facebook anymore because I don’t want to see it.  I don’t want to see other people living their lives because I feel like I don’t know how to live mine anymore.

I hate that I’m being fake every day when I congratulate people over their pregnancies, over new babies, over second or third babies.  When I patiently listen to people complain about how hard it is to be a parent.

It makes me want to die when I hear things like that.

I hate how scared I am of the future now.  I feel like I’ve stopped knowing how to imagine good things happening.

Yes, I’ve always had my struggles with depression, but I think no matter how bad it got before, there was always a little part of me that had hope that something better was coming.

I feel like that part of me is gone now.

All I can see is how things can go wrong.  And all I can feel is scared.

Terrified, even.

Broken, lost, hopeless, helpless.

I was talking to a good friend the other day, really the only person “in real life” that I’ve been able to talk about this honestly with at all, about how as wonderful as Paul has been, sometimes it’s hard because I don’t feel like we’re totally on the same page.

He is so fucking hopeful.  And optimistic.  That somehow this is going to all work out.  That I will be able to get pregnant, that the baby will make it to viability, that we will have a baby in our home at the end of this long road we’ve been walking.

I don’t know.  Maybe it is better that one of us feels that way.  Maybe someone needs to?

I know this is not the right way for me to be approaching all of this.  Especially right now in the middle of transitioning meds and preparing my body to be a hospitable place to house a fragile life that will be 100% dependent on it for nine months.

But I think that’s also why I feel this way.  Because I’m so close and I feel so far away.  I have no confidence in this broken down, beat up body.

And I feel like I’ve already failed by not being able to get completely off the meds for this.  I feel guilty that if I do get pregnant, my baby is going to be at risk just for the fact that it’s in this POS body.  That I’ll be exposing it to all these unknowns because I have to keep taking meds for the duration of any pregnancy.  And then I feel selfish because I still want so badly to be pregnant.

In my really low moments, I think that this must be why God doesn’t want me to have a baby.  Because I’m a horrible person and I don’t deserve one. 

And I know this is ridiculous, because if anyone, my friend I mentioned above, my cousin who has now had two miscarriages, anyone going through all this BS ever said they felt that way about themselves, I would tell them how ridiculous they were being, that God doesn’t pick and choose who to give babies to by who “deserves” them (I used to watch Teen Mom, after all).  But this is the thought I torture myself with anyway.  Because it feels true.

I’m trying to keep moving forward.  Get up out of bed.  Put one foot in front of the other.  Swallow the tears that come randomly throughout the day.

Trying to figure out how to get the hope back.

But I don’t know.

like sands through the hourglass

When I moved this blog to wordpress a year and a half ago, I meant for the layout to be a temporary one.  Until I had the time and motivation to figure out how to edit the stylesheets to my liking, until I had the right image to turn into a new banner, until I had the right inspiration.

As you can probably tell, there was no inspiration.  But I did finally just get so sick of looking at the old layout, that I felt the need to replace it with something, anything.  I really started to hate that image, which was just a blown up, pixelated version from the prior layout I had on blogger.  For some reason I finally just needed something to change.

Maybe it was a metaphor for something more.  Probably.  Obviously?

Oh and I also realized that I’m way too old to learn new things.  So I’ll just have to live with slowly tweaking this prepackaged template.

reach down your hand in your pocket, pull out some hope for me

I have been writing.  I stopped taking pictures, but I have been writing.  I want to get back on the picture thing but these past few days I have been in a dark emotional hole and the apathy…oh the apathy.

I am currently working on a post that is already nearly 6,000 words long – and I’ve only just scratched the surface.  I thought that writing all of it, writing the story of how I got to the present, would help.  Would pull me out of this funk I’ve been sinking into.

But so far I don’t think it has.  The catharsis I thought would come is nowhere to be found.  In fact, I think I feel worse.

But I do plan to keep going, to tell the story if only because it’s never been told before.  Maybe it won’t be until the end that everything will become clear to me and I can stop tormenting myself with the past.

Well I’m so terrified of no one else but me
But I’m here all the time
So I won’t go away

It’s been a long day. A long year. Sometimes it feels like a long life.

a sports analogy

Devastating.

That is the only way to describe yesterday.  I nearly lost my voice from all the screaming and went to bed sad and disappointed.

Yes, I’m talking about the Niners.  I think other than my fellow fans in red and gold, only those in Baltimore can feel my pain today.

Sigh.

This is why following sports can be so hard.  Your emotions rise and fall on the performance of others, people you have no control over (I’m looking at you Kyle Williams!) despite wearing your lucky shirt or following a pre-game routine or avoiding certain behaviors that could be seen as “jinxing” them.

It’s weird how similar it feels sometimes to my journey towards pregnancy.  How often I’ve felt like an observer on the sidelines, breath held, lucky hat on my head, fingers crossed, just hoping, wishing, praying for the ball to cross that line.

I know I have much more control over my health than I do a football game, but sometimes the lupus does make me feel just as powerless.  In my lowest moments I can’t help but feel like despite my best efforts, I can’t win.  Right now, I’m fighting a cold that I’m terrified will send me into a flare – I’m sure my doctors would attribute a flare right now to me switching meds and not simply the stress getting sick puts on my body, particularly when my work schedule is such that I can’t take time off to properly rest.

(And in case you’re wondering, what happens if I get sick during pregnancy?  I plan to tell my boss VERY early on despite common practice because I do plan on doing whatever I need to, including missing as much work as necessary, to maintain a healthy pregnancy.  But it’s hard to tell your company this BEFORE you even get pregnant).

I guess all I can do is keep doing what I can to stay healthy and at the end of the day, keep hoping for victory.

hodge podge

I had a really angry, bitter moment today.  Okay, clearly I have a lot of those every day, but this was one of those where I found myself suddenly typing in all caps and wanting to rage at anyone who would listen.  I was at work so luckily I managed to keep my audience down to the hubs and our other buddy who is in a Bloomberg chat with us.

Let’s reach into the archives for a moment and revisit this post from October 2010 when I found out that Paul’s douchey childhood best friend had a child out of wedlock.  I don’t know if I ever mentioned this here, but I was right about her being young (I think she had just turned twenty when the baby was born).  I had met some of his girlfriends when he was living here in the states and started calling all of them Bambi because he liked girls who were young and naive and he switched them out often enough (and they were similar enough) that I didn’t even bother trying to remember their names.

Anyway, he came up today in conversation because he had sent Paul some pictures of a copper mine they just found on his land in the Philippines and bragging about how he now (literally) has a private army to protect him (because kidnappings of rich folks are common in the PI).  I remarked casually that he better also have someone guarding his gf and their kid and Paul casually mentioned back, “Oh he has a new gf now.”  Um, of course he does.  And she’s probably twelve and he will probably knock her up too because he is a scumbag douchehole and I officially hate his guts.  He lives such a fucking charmed life it makes me sick.  I don’t know why I have such a visceral reaction to him in particular, but I do.  It probably has something to do with the fact that Paul always has an excuse for him and it doesn’t even make sense to me how they are still friends because they are so different and have such completely opposite moral codes (they have been best friends since they were six years old and maintain their friendship now even though they live on different sides of the world).

It’s just NOT FAIR.  And I know that all this “infertility stuff” is one giant lesson in how fucking unfair life is, but still – IT’S SO FUCKING UNFAIR that this cradle-robbing prick has managed to spread his seed.  Ugh.

***

As I mentioned briefly in my last post rant, I switched meds last weekend.  I did finally hear back from the doctor last week and was told that based on the test they ran I didn’t seem to be at risk for my WBC crapping out.  So, yay.  He did throw in the caveat once again, “if this is still what you want to do….” before he went on to ask me where they should send the prescription.  I also have to go get my blood drawn again next week and probably every two weeks or so for the next eight weeks.  I want to be excited about this, but I also don’t want to get my hopes up.  I am supposed to be in a wedding in August and I actually let myself think the thought, “What if I get a bridesmaid dress and then can’t fit into it because I’m big and pregnant?”  Then I quickly smashed the thought of my head because there are still so many things that could go wrong between now and me being pregnant and carrying to full term.  Is it bad for me to think this way?  Am I dooming myself to failure?  Or just acting out of self-preservation?  I wish I knew the answer.

***

Now that I’m officially on some sort of path towards fixing up the ol’ body in order to gestate another person, I really need to figure out how to kick my Am.bien habit.  It’s on the backburner right now while I take care of some other stuff and adjust to the new meds.  Lack of sleep always causes me to flare so I figure it’s probably not ideal to go cold turkey.  I need to figure out some sort of regimen to taper down over the next few months while I’m still on the Cell.cept anyway.

I think Paul will be glad when I quit because I’ve had some weird nights lately in my hazy Amb.ien induced fog.  On Tuesday, for some reason I decided it would be a good idea to go up the stairs, in the dark, with a bowl of pears in one hand and a plate of rice in the other.  Of course, I tripped and fell on the way up and broke the plate and Paul found me standing, confused in the stairwell.  He sent me up to the room and cleaned up the mess.

The next night I think I had some sort of meltdown where I spewed all my secret fears about, “What if I flare after the baby is born and I die?” and told him that I wanted him to find a nice woman to get remarried to and raise our imaginary child with.  I also vaguely remember repeating over and over again that he is too good for me and asking him why he was even with me.  The only reason this even came back to me at all is because I woke up with incredibly red, puffy eyes.  The sad thing is, it was all true.  It’s all stuff I’ve thought so many times in my head, especially recently as we move towards pregnancy being a real possibility.  I have a lot of fears and worries.  I also, clearly, have low self-esteem.

***

Completely switching gears now, I’m an SF gal, so you know I had to mention this at some point – GO NINERS!  I was a little too young for the Joe Montana glory days, but I did get really into football during the tail-end of the Steve Young years.  I do get quite passionate about teams that I follow so I kind of had to distance myself from football the past nine years because the 9ers were just so awful and disappointing.  I love being able to watch games again without being in a foul mood afterwards!  One win away from another Superbowl and I actually feel like we have a shot!  The game against the Saints last weekend was amazing, I couldn’t stop screaming at the TV during the last four minutes (YES! NO! YES! NOOO! YESSSSSSSSSSS!) and I’m hoping this Sunday will be equally as exciting with another win for the home team!  A good game has always been the one thing that can take my mind off anything else I’m struggling with so this is just what I need.

***

Also, football related, I was really pulling for Tim Tebow and the Broncos last week and was sad to see them lose, though it was expected.  If I don’t have a horse in the race, I typically cheer for the underdog regardless (so I NEVER cheer for the Pats – yuck) but after watching the Steelers game, I couldn’t help but want the Broncos Cinderella run to continue (although they would have eventually lost to the Niners in the Superbowl anyway ^^).

I honestly only watched the Niners this season so I hadn’t actually even seen the Broncos play up until the game against the Steelers and had only heard about “Tebowing” – and mostly all negative things about it.  Before seeing it with my own eyes, I thought, “Eh, it does sound kind of like he’s being a little too flamboyant about it and could be doing more harm than good,” but after I actually saw what he does, it really didn’t seem that bad to me.  It kind of just seems like he loves God and praises God in everything he does and isn’t ashamed of what he believes.  Which I respect.  Before the Broncos-Patriots game I watched some special they had on him with a lot of candid video of him on the field during games and that only cemented my belief that he is a genuinely good guy who is just being a genuine Christian and not apologizing for it (lots of footage of him encouraging/consoling his teammates, singing gospels to himself and saying little prayers).

I don’t really get why people hate on him, although it did remind me of something that Michael Chang (the tennis player) spoke about when he said that the media was not at all comfortable when he talked about his faith as he was having success in his tennis career.  He said he was shocked by the fact that he was openly mocked by the press for it, so I guess it is probably a similar situation here.

Like all that hubbub over the Tebow Superbowl commercial a couple years ago that turned out to be a positive commercial celebrating life without even mentioning abortion.  I didn’t know much about Tebow at the time but still remember being confused about what the big deal was when I actually saw the commercial vs all the stuff I had heard about it.  I remember all the press coming out about it before the commercial had even aired and people saying it was “offensive” or “holier than thou.”  It turned out to be his mom saying he was her miracle baby and how she had almost lost him many times (I think this article does a pretty good job of summing up the “controversy” – you can see the video here).  If someone can give me an actual explanation as to why that ad was so “offensive” I’d love to hear it.  It’s weird to me how people can be so upset about Christians talking about their beliefs – are Christians now the only Americans that no longer have their first amendment rights?

***

I do have Project 366 pictures to post as soon as I gather up enough energy to upload them.  To be honest, some of them are half-assed iPhone pictures, but I’m still proud of myself for taking at least one picture every day!

In which my first “real” post of the year is a rant written on my iPhone

Not in a good place right now. This is a vent more than an actual post and written from my iPhone so apologies in advance for any typos or grammar issues as proof reading will be minimal.

I started my new meds over the weekend – more on that later – and because of that I’m quitting a bad habit I should have quit long ago. As a result I’m cranky and my appetite is FUBAR. I feel like total shit.

Last night when I went to go pickup Paul I discovered our car battery was completely dead. It wouldn’t even turn over when we used our portable battery. We thought it was still under warranty so we figured we would wait til tomorrow (today) get it jumped and take it straight to the dealership.

I rushed home after work to have AAA come jump the car so I could then rush to the dealership for the 4pm appt. Meanwhile a buddy I haven’t seen for 2+ years texted me that he was in town from Miami for a couple hours today and wanted to meet up if I had time. He came over and waited with me for AAA.

When the tow truck came the guy said he could replace the battery for $105 total on the spot. I declined because I thought Paul had confirmed when he made the appt that we were still under warranty.

Of course that was not the case as I discovered AFTER driving 30min to the dealership. In fact it will cost $130 and I have to wait an hour which means I will be stuck in massive traffic trying to get back into SF during the peak of rush hour. And for this privilege I will pay an extra $25.

I could have been at home, catching up with an old friend. Instead I’m sitting in a waiting room, pissed beyond belief and not even sure who to be mad at. Kind of mad at myself for not explicitly asking Paul to check that this was covered and this wouldn’t all be one giant waste of my time. Shit like this does not help my obsessive need for control and asking a million questions whenever someone else is doing something gin my behalf.

End rant. For now.

I’ll get over it. I know there are worse things.

1/366

For Paul and I, 2011 snuck off under the cover of darkness while we slept.

It was sort of fitting really.

As years go, 2011 was a fairly uneventful one.  No significant life changes, good or bad, just…life.

The year…passed.  And now it’s gone.  And suddenly here we are at the beginning of another one.

I went back and read my “goals” for last year.  I fell unsurprisingly short on most fronts.  And achieved a few.

I thought about making some for 2012 but the truth is, I just don’t have it in me.  Not right now.

So for now, I am just trying to stick with this Project 366 thing.  I can’t even remember the last time I stuck with anything for 366 whole days in a row.

 

 

For Day 1, a bowl of clam chowder Paul made (Hog Island style).  The picture is whatever (out of focus and underexposed), but the chowder was certainly the most memorable part of New Year’s Day.

Merry Christmas y’all

I’m at the in-laws muddling through with a cocktail of my last anti-anxiety pill and as much alcohol as I can get my hands on (which is not nearly enough).

Don’t judge me.

new normal: the parade of doctors

Note: I’m writing this quickly so that hopefully I will actually finish it and hit publish in one sitting.  Otherwise, it will likely end up in the blackhole known as the “drafts” folder.

1) I’m alive and 2) as expected, Hawaii was, well, Hawaii.  And by that, of course, I mean, it was totally amazing.  By the end of it, Paul and I were seriously weighing the potential net happiness we might be capturing living with less income IN Hawaii versus higher incomes but decidedly NOT Hawaii (not that where we live is so terrible, but, HAWAII!! Right?).

The cherry on top is that work has been slow, so the vacation glow lasted a bit longer than I would have expected it to.

But I’ve been back over two weeks now (so the glow is long gone).   And I’m not even sure where to begin.

And clearly the note at the beginning of this post was nothing but a big fat LIE since I’ve had to rewrite the preceding paragraph three four times now to accommodate the growing length of time between the present and our vacation.  Still I’m determined to publish this one. 

I saw my rheumy back in October and he, predictably, did not give me a pep talk about getting pregnant.  But he did say that it might be a good time to get more doctors involved again, because yay? The more doctors the merrier right?  (Please note that was dripping with sarcasm).  He wanted me to consult with someone he trusts at a prominent hospital he is affiliated with, but the thought of yet another doctor visit that requires driving through traffic at the worst possible times of day was a complete non-starter.  I went back to the doctor I saw last February, right before All Hell Broke Loose (better known as Summer 2010).

Part of me felt very…strange..being there.  I don’t know what it was exactly, something about being there.  Where I had been so hopeful.  When I left that office the last time I clearly thought the next time I came back, I’d be pregnant.   And yet I was not pregnant.  Not even close.  In fact, a bit further away than the last time I saw him.

I don’t think they are all that used to dealing with people like me either.  Women who come back for multiple pre-conception visits.  Because the receptionist seemed a bit confused (though she caught herself quickly and tried to hide it) that I had been there before and was back but not pregnant.

Anyway, to further freak me out (or maybe because I was freaked out) my bp was high, just like it was the last time I was there and we were like “meh, it’s just cause I’m at the doctor’s!” except that when I went home I kept checking and checking for days and it was Not Good every time.

But I have been taking my bp more regularly since then (it had been so good for awhile that I hadn’t bothered) and it seems fine.  To be safe I bumped the meds I had cut (without being advised) back up a bit….because….the high risk ob (once again) said if I could switch medications he didn’t a high risk for anything unmanageable.  In other words, from his point of view we can start trying two months after I switch medications.

I did immediately start calculating when that meant I could be pregnant in my head.  But also know that this doesn’t necessarily mean my other doctors (see? didn’t I tell you? fun!) won’t want to take more conservative approaches and wait 4-6months.

The high risk-ob did not feel like he should be the one to switch my meds so I asked him to refer me to a new kidney specialist in the city since I’m not especially attached to my current one who is an hour’s drive away.  I had my appointment with my new Dr. Kidney the day before Thanksgiving and really liked him but he also said he was not prepared to switch my meds without first discussing with the high-risk ob and my rheumy (who I do plan to keep seeing despite the distance – he has known me for 4+ yrs and I decided it’s best to stay with at least one doctor who is very familiar with my history).  Understandable since that was only my first time seeing him, but still disappointing.  I was hoping to be on a new med by now, but I suppose this is just one more thing I need to be patient about.  He was very open to the idea of me switching meds but said he thought it was the right thing to do to confer with my existing army of specialists.

I suppose this is normal (okay, so none of this is actually normal but you get what I mean) but as I get closer to (hopefully) the reality of being “cleared” to TTC (trying to conceive) the more nervous I am about the idea of being pregnant.  The last two appointments have basically been a rundown of the laundry list of possible complications I would face during pregnancy (this from two doctors that actually seem mildly encouraging about me being able to sustain a healthy pregnancy) and a lot of talk about how closely I would be monitored through the whole process.  I have been talked to about how it is not really a question of IF I will be on bedrest, but at what point.  Pre-eclampsia has also been discussed ad nauseum.  I will be monitored bi-monthly via ultrasound due to a potential heart condition that can be caused by an anti-body that I show positive for, apparently the issue can be correctable with surgery so even though this is considered “rare” they still monitor for it).

While I probably should be, I’m not really scared about all of this for my own health/discomfort.  I have been through a lot of physical discomfort because of my lupus.  I have been bloated, nauseated, exhausted, physically unable to stay on my feet for more than few moments…I would have much rather preferred to go through all of it with the “prize” at the end of nine months.  So the prospect of going through all the physical crap and all those appointments with the hope of a baby at the end of it sounds like quite the deal to me actually.  I will probably still complain about how shitty I feel if the pregnancy turns out to be a difficult one, but eh, such is life.  When I look at it from where I am now, I am okay with this part of it.  I am scared of losing more kidney function but again if I’m looking at this through the lens of having a healthy baby at the end?  It feels very worth it.

But knowing all that can go wrong…having to plan for worst case scenarios…I think this is why I am not really angry at my rheumy for being so negative about pregnancy.  I get where he’s coming from.  The concerns are real and serious enough that they cannot simply be written off no matter how badly I want to gloss over this, plunge in and deal with the consequences later.

There is just so much to consider and I worry constantly that I’m being selfish by insisting on getting pregnant and trying to have a biological child.  I’m terrified that if this turns out badly I will hate myself forever.   And yet I’m not willing to give up this dream.  Which makes me feel even more selfish.

I really haven’t talked about these conflicting emotions with anyone other than Paul.  Mainly because from the outside I know the simple answer is to just not risk it.  Maybe it’s the “right” answer but it doesn’t feel right.  Maybe it’s the answer I will come to in a few months if/when we are actually allowed to start TTC and I’m not in the middle of fighting merely to have the option of trying (i.e. where I am right now), but it’s not the answer where I’m at right now.

Anyway.

I’m supposed to call Dr. Kidney on Thursday to see what the “team” thought about The Big Switch.  I’m trying not to get my hopes up though I think the chances are small that they would say no (since I’m not asking to be totally off meds or anything wild and crazy like that =P).  Still, you never know.  And then there’s the question of how my body will react to the new meds for a few months, and whether or not we will even be able to get pregnant (which I don’t take for granted anymore), and if we make it that far, nine months after that of “walking on eggshells” as my rheumy so eloquently phrased it.

So I guess that’s that.  I started this post so many days ago now that it’s just become a mish-mash of all the random crap I’ve been thinking about.  I guess it’s fairly obvious that my mind has pretty much been consumed with one thing and one thing only.

In an attempt to end things on a positive note, I did have the thought on the way home from the high-risk ob (way back on Halloween!) that in a way it’s been a blessing that Paul and I have had so much time as a couple (7+ years now) alone as a couple.  As much as I do want to have babies, I also enjoy having my hubby all to myself.  Maybe it’s only now that there’s actually a very dim light somewhere at the end of that tunnel that I can feel this way, but I try to remind myself every day now to enjoy our time alone as a couple.

Writing this from the backseat of our friend’s car on the I-5 North. We were in LA for the weekend (wedding) and I’m dragging this road trip crew to the doctor’s with me because I was too lazy to reschedule.

Only realizing now (too late) that this may not have been the best plan considering the past few visits I have used the drive back as a private sobfest. Hopefully my doctor will do everyone a favor and skip the adoption talk this time.

Unlikely though, since I am going to be honest about the fact that I already cut my own dosage of Cellcept last month.